Welcome to CCISC's Data Management Website!



The CCISC is a not-for-profit organization dedicated to the advancement of the science and treatment of infants, children, and adults requiring surgical / interventional procedures for the treatment of congenital heart disease. The mission of the CCISC is to design, conduct and report the findings of scientific studies in interventional cardiovascular care for individuals with congenital heart disease.

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Who is eligible to participate in the CCISC Registries? Participation is open to all members of the CCISC.

How do I become a member of the CCISC? Please send your contact information to Nancy Sullivan (nsulliva@med.wayne.edu) or join the CCISC List Serve (lists.wayne.edu). Click on Browse. Click on CCISC.

What is list serve? List serve is an on-line community of 223 pediatric interventional cardiologists from around the world who share interesting cases, surveys, questions and tips. There are group archives going back to July 2007.

What are the current CCISC registry projects?
1) "Comparison Between Surgical vs. Balloon Angioplasty vs. Intravascular Stent Placement for Recurrent or Native Coarctation of the Aorta". Principal Investigator: Thomas J. Forbes M.D. Contact: (tforbes@dmc.org)
2) "A Prospective Data Registry for the Congenital Cardiovascular Interventional Study Consortium: Risk Stratification for Cardiac Catheterization Procedures". Principal Investigators: David Nykanen MD, William DeCampli MD. Contact: david.nykanen@orlandohealth.com

Click here to access CRISP - Catheterization RISk Score for Pediatrics http://www.pmidcalc.org/?sid=26527119&newtest=Y

3) "Ductal Stenting vs. Surgical Shunt for Infants with Duct Dependent Pulmonary Blood Flow" Principal Investigator: Phillip Moore, M.D. Contact: (pmoore@pedcard.ucsf.edu)
4) "Congenital Coronary Artery Fistulae: Longitudinal Follow-up with Focus on Thrombus Formation, Stenosis, and Perfusion Defects Following Standard Therapy". Principal Investigator: Srinath Gowda, MD, Co-principal Investigator: Lourdes Prieto, MD. Co-principal Investigator: Larry Latson, MD Contact: (Srinath.gowda@bcm.edu)
5) "Implantation of Endovascular Stents for Dilation of Pulmonary Artery Branch Stenosis in Patients with Congenital Heart Disease". The PULMONARY ARTERY STENT STUDY (PASS). Principal Investigator: Frank Ing, M.D. Contact: (frankfing@gmail.com)

How do I participate in the CCISC registry Projects?
1) Please contact Nancy Sullivan (nsulliva@med.wayne.edu) for a specific protocol, case report form and CCISC participation agreement for each project
2) Sign and return a CCISC participation agreement for each project
3) Contact your IRB for approval of the registry at your site. Forward your IRB approval letter to Nancy Sullivan (nsulliva@med.wayne.edu).
3) Your site will be given database access via a unique ID and password when steps 2 & 3 are completed.
4) Collect and enter your data!